Wednesday, 28 September 2011

Find lots of clinical trials to get involved in (Thames Stroke Research Network)

Have a look at the Thames Stroke Research Network website 

Click the logo to enter site

Click on any of the indicators on the map below. Each of the indicators shows where you can get involved in trials at your local hospital. Often these can be a great way to get free intervention and free therapy.. and getting involved will certainly stoke your desire to retrain yourself! You can also play a great part in helping to prevent other people having strokes or help to limiting its effects by your participation. Have a look. There is so much exciting innovation out there - and the clinicians want to share it with you.



Use the interactive map below to find out which studies are open at your local hospital. The embedded links will take you websites with more information about these studies. If you would like to view this in a larger pleases follow this link :Larger Map
The Thames Stroke Research Network is part of the Stroke Research Network, which is one of the topic specific networks within the UKCRN established by the Department of Health and aims to improve the speed, quality, and integration of research, ultimately resulting in improved patient care. The aim of this network is to provide structures and support to local clinicians to get involved in recruiting patients to high quality multicentre trials.

ARNI will be at the UK Stroke Forum Conference in Glasgow 29th November - 1st December

Click  logo above to find out more

Clinical Trial Looking for Stroke Survivors to participate (BOTOX Study)




We are looking for volunteers to take part in our study.

Participation in the study will involve a single session of injections into your arm, 
followed by 10 sessions of physiotherapy over 4 weeks, and 3 more assessments 
after this.

Not everyone will be suitable for this particular treatment. The final decision on 
eligibility will be made by a multi-disciplinary healthcare team.
All tests and therapy will take place at the National Hospital for Neurology and 
Neurosurgery. We will reimburse you for travel expenses.
If you are interested in taking part, would like more detailed information leaflets or 
would like to ask questions without committing to anything, then please contact:

Luci Crook (Research Physiotherapist)
l.crook@ucl.ac.uk
Telephone: 020 3448 875

Clinical Trial Looking for Stroke Survivors to participate (Sleep Study)

Clinical Trial Looking for Stroke Survivors to participate (Sleep Study)


Click on logo


Please apply to Katherine Herron (Trainee Clinical Psychologist)


Katherine.Herron.2009@live.rhul.ac.uk

Telephone:   Please ring 01784 414012    01784 414012    if you have read information sheet (to follow) and think you would like to be involved.

ARNI and Headway Cornwall collaboration


HEADWAY GIVES HOPE TO THE STROKE AND ABI COMMUNITY IN CORNWALL
People who have been left debilitated by a stroke or brain injury are now benefitting from a pilot programme to introduce a revolutionary new therapy designed to improve mobility.


ARNI has trained six experienced exercise professionals through their Middlesex University Functional Training After Stroke Accreditation. This is a specialised ARNI programme that introduces new techniques for recovering physical mobility in patients.

Headway, supported by NHS Cornwall and Isles of Scilly, have now introduced the ARNI Trust's Action for Rehabilitation from Neurological Injury physiotherapy and rehabilitation programme into Cornwall and the Isles of Scilly.

The first group has now started in Hayle with trainer Felicia and therapist Fiona, supervised by ARNI Director Dr Balchin and Headway manager Frances Colliver.


The trained instructors will run four 12 week ARNI programmes in major centres in the county from Penzance to Truro and Launceston teaching up to 100 people how to cope better with their changed circumstances.
Deborah Matthews, Commissioning Manger for the PCT said “This programme could over time help many ABI and stroke sufferers to lead a fuller more satisfying life by being able to do so much more for themselves. It is very positive news and we are delighted to support this initiative for some of the most vulnerable people in our community”

For further information, please contact:
Dr Tom Balchin
Founder & Director, ARNI Trust
Tel:             07712 211378          07712 211378     
Matthew Cross
Trustee of Headway Cornwall
Tel:             01872 265110        01872 265110     
Email: matthew.cross@headwaycornwall.org.uk


About Headway Cornwall:
Headway Cornwall is a registered charity (no 1060882) set up to give help and support to people affected by brain injury.
  • Our mission is “To work to improve the quality of Life of those with a traumatic brain injury, their relatives and carers”.
  • We offer a range of services through centres in Lostwithiel and Truro
  • These services are designed to improve self-respect, self-confidence, daily living skills and self-esteem.
  • We promote, where possible, independent living.
  • Our Programmes are geared to support each person's abilities and preferences

Get your copy of Dr Balchin's Book/Manual: 'The Successful Stroke Survivor'



       The Successful Stroke Survivor
        by Dr Tom Balchin
       545 PAGES (A4 format)
       140 illustrated strategies & techniques


690 illustrations and 367 photos

Published by Bagwyn Press in the UK




It is the first of its kind. It is a part-book and part-manual for those who have suffered a stroke and have reached the end of formal therapy. 

The highly motivational approach to functional training revealed inside is a distillation of many hundreds of innovative ways created to encourage positive adaptations in the brain after stroke.

Would you like to be able to get up from the floor without any support of any kind? YES!
Would you like to tackle spasticity in your hand? YES!
Would you like to become stronger and less dependent? YES!
The Successful Stroke Survivor will show you how, and much more.

Like the author, many stroke survivors want to retrain and improve. They want techniques evolved from real-life that people in the same situations have learned and had success with… which they can easily understand, adjust to their own physical limitations and practice. Inside, stroke survivors will find out how to:
  • Correct balance, co-ordination and posture over time
  • Increase muscular, tendon and ligament strength over time
  • Decrease muscle shortening and increase isolated movementreturn over time
  • Increase confidence and remove fear of the consequences of exercising
  • Become progressively more self-sufficient
  • Become productive in an occupation and be happy with life
Users are guided to explore and innovate from the strategies, which are shown with accompanying illustration sequences.


Revealed here too are many simple but effective training tools that families, carers and friends can construct, or seek out, in order to drive recoveries forward. It is a massive resource for the switched-on stroke survivor and is set to become the next 'big book' in stroke.


CLINICIANS IN STROKE RECOMMEND IT, TRAINERS ARE USING IT AND STROKE SURVIVORS LOVE IT!



This book/manual has taken 4 years to write and has hundreds reviews written about it by stroke survivors, trainers and experts in stroke and ABI. See the website for all details, including how to reserve your signed, postage paid-for advance copy. The strategies and Approach shown have undergone 2 years of senior clincal physiotherapist due-diligence.


Publication in November 2011

ADVANCE COST: £34.40 for 1 of 100 numbered/signed first edition. Postage £4.60

SAVE £6!! ORDER NOW.




TO FIND OUT MORE AND RESERVE A COPY OF THIS BOOK IN ADVANCE, GO THE BOOK WEBSITE



New ARNI Stroke Gym opened in Luton

New ARNI Stroke Gym Opened in Luton


Luton’s new integrated stroke service set up to help local people and their families affected by stroke was officially opened yesterday by Lord Lingfield.


While this was the official opening, the centre, which is funded by Luton Borough Council with a grant from Beds & Herts Heart and Stroke Network for a twelve month period, has been operating since October last year.

The centre supports local stroke survivors like Tony Marsden, 63 from Luton, who had a stroke in February 2010 and whose ability to communicate has been affected as a result. Attending the centre has helped Tony and other stroke survivors to learn new skills and regain their confidence through group and one-to-one support.

A partnership between The Stroke Association, Luton Borough Council, NHS Luton, Action for Rehabilitation from Neurological Injury (ARNI) and Beds & Herts Heart and Stroke Network; the service was developed in response to feedback from residents affected by stroke who highlighted the need for more information about the condition and available help.
As well as aiming to raise general awareness about stroke, the new service includes specialist therapies by Action for Rehabilitation from Neurological Injury (ARNI) instructors. Rehabilitation sessions are run once a week by three trainers, with six clients on the programme at any one time. There is also a weekly drop in session for those who have completed the programme.


Facilities within the centre include cross-trainers, treadmills, recumbent cycles, an upright cycle, parallel bars and an ergometer.  There are also plenty of mats, medicine balls, gym balls, a neurogripper, sticks and a variety of handheld soft balls to help clients with their rehabilitation.

The service will be expanding in the coming months and years and is expected to cater for many more clients at any one time, and to operate at other locations across Luton.

Rebecca Chatterton, Stroke Development Officer in Luton says: “It is estimated that there are about 300 strokes a year in Luton with around a third of these causing moderate to severe long term disability. We are very aware through our work so far, that there is a huge need for and real interest in this new facility. We are delighted at the positive and inspirational feedback we have received from those like Tony who attend the sessions.  Anyone requiring information about future sessions and how they can help in the life after stroke journey can contact me at The Stroke Association on             01582 891330 begin_of_the_skype_highlighting            01582 891330      end_of_the_skype_highlighting       or Polly Parrish at Chaul End Day Services on             01582 557155 begin_of_the_skype_highlighting            01582 557155      end_of_the_skype_highlighting      ."

Cllr Shiela Roden, Portfolio Holder for adult social care, said: “This really is a first class centre which has already helped families get back to normal life so quickly after a stroke. From an initial £5,000 investment which has allowed clients to undergo intensive rehabilitation to get them back on their feet, we estimate that £43,000 has already been saved on future health social care services that would have otherwise been needed.”

If you would like further information about stroke or The Stroke Association, please contact the Stroke Information Service on             0303 30 33 100 begin_of_the_skype_highlighting            0303 30 33 100      end_of_the_skype_highlighting      , or visit the website at www.stroke.org.uk.